Lady Star Posted April 13, 2011 Share Posted April 13, 2011 Good luck with the op - I am sure you will be fine Link to comment Share on other sites More sharing options...
Titian Posted April 15, 2011 Author Share Posted April 15, 2011 Update: All went well, op took around 3 hours and worse part was waking up as they were pulling out the tube from my throat, so i awoke thinking I was choking. Just got home, quite sore but no damage to parathyroids thankfully, so no calcium. 175 micrograms of thyroxine started today and all bloods fine. Two bolts in my neck which can be removed next week. Thankful it's all over Link to comment Share on other sites More sharing options...
metalman Posted April 15, 2011 Share Posted April 15, 2011 Two bolts in my neck which can be removed next week. Just watch out for the crowd of peasants with flaming torches. Link to comment Share on other sites More sharing options...
rothschild Posted April 15, 2011 Share Posted April 15, 2011 I'm really pleased it all went well for you Titian. Onwards and upwards now......take care. Link to comment Share on other sites More sharing options...
BJan Posted April 15, 2011 Share Posted April 15, 2011 Update: All went well, op took around 3 hours and worse part was waking up as they were pulling out the tube from my throat, so i awoke thinking I was choking. Just got home, quite sore but no damage to parathyroids thankfully, so no calcium. 175 micrograms of thyroxine started today and all bloods fine. Two bolts in my neck which can be removed next week. Thankful it's all over Glad to hear it all went well! Link to comment Share on other sites More sharing options...
Titian Posted April 19, 2011 Author Share Posted April 19, 2011 Just watch out for the crowd of peasants with flaming torches. The bolts came out today..... and my head is still attached to my neck!? Link to comment Share on other sites More sharing options...
Titian Posted July 17, 2011 Author Share Posted July 17, 2011 I had a lobectomy in 94 and another one in 95 (and a lymph node clearance) followed by ablative radiotherapy at the Weston Park in 2001. So I definitely don't have a Thyroid gland anymore. Since then I've been on Thyroxine. The hardest thing for me is remembering to take my tablets. Because you don't feel any ill effects from missing even a few days, it can easily become a week or a month - and then you start feeling lethargic, getting cramps in your legs from walking (lactic acid transport away from muscles is compromised when you are hypo) and your skin goes dry (and quite possibly your memory goes wonky). I've presented with a TSH level so low, the doctor expected me to be showing symptoms of psychosis - I asked him how I'd tell the difference. They despair of me and my compliance issues - most patients are more reliable. But apart from that, I've barely noticed any differences. Oh you get free prescriptions once you're dependent on Thyroxine (medical exemption from prescription charges). Just resist the temptation to run your thyroxine levels higher than you need - you'll lose weight and go mad simultaneously. And get a six monthly blood test. But your doctor should go over all this for you. The Ops I had were 15 years ago, so I imagine the tech has moved on a bit, but I was out in a few days with staples in my neck both times, and back to normal after a week or two. I'd go for the op. The medication dependency is no biggie. Especially if you can convince your doctor to get a 3-6 months supply instead of the usual 28 days. And if you find yourself without Thyroxine for a week or so, it's no bother (your mileage may vary), just make sure you start taking your tablets again as soon as possible. Here I am 3 months on from surgery and.... not really sure what is going on. My brain is not functioning correctly to the point that my vision feels weird (Feels like I'm looking through a peephole on the world?!) TSH is very supressed so lowering my dose of thyroxine but confused by my hypo symptoms. Arrrggghhhh And Phan..... I'm experiencing the madness just not the weight loss. I seem to get a sudden rage that develops in my guts, and some weird paranoia. :loopy: Link to comment Share on other sites More sharing options...
Lady Star Posted July 18, 2011 Share Posted July 18, 2011 Here I am 3 months on from surgery and.... not really sure what is going on. My brain is not functioning correctly to the point that my vision feels weird (Feels like I'm looking through a peephole on the world?!) TSH is very supressed so lowering my dose of thyroxine but confused by my hypo symptoms. Arrrggghhhh And Phan..... I'm experiencing the madness just not the weight loss. I seem to get a sudden rage that develops in my guts, and some weird paranoia. :loopy: I have never known this to be related to a thyroid condition, although vision can get a bit weird pre op, post op it should be back to normal... And paranoia??? Are you having a reaction to the thyroxin tablets? Have you been to the drs with your symptoms??? Link to comment Share on other sites More sharing options...
vwkittie Posted July 18, 2011 Share Posted July 18, 2011 Here I am 3 months on from surgery and.... not really sure what is going on. My brain is not functioning correctly to the point that my vision feels weird (Feels like I'm looking through a peephole on the world?!) TSH is very supressed so lowering my dose of thyroxine but confused by my hypo symptoms. Arrrggghhhh And Phan..... I'm experiencing the madness just not the weight loss. I seem to get a sudden rage that develops in my guts, and some weird paranoia. :loopy: It's confusing because symptoms for hyper and hypo can vary so much between different people, and you can get the same symptoms for both. Personally, when I experienced 'the rage' it was when I was hypo (am so glad this is sorted for me as suddenly experiencing extreme anger towards people around you for no reason is not good at all). Paranoia I always associated with hyper though. Are there any other symptoms? What does your consultant or GP say about them? Link to comment Share on other sites More sharing options...
Titian Posted July 18, 2011 Author Share Posted July 18, 2011 It's confusing because symptoms for hyper and hypo can vary so much between different people, and you can get the same symptoms for both. Personally, when I experienced 'the rage' it was when I was hypo (am so glad this is sorted for me as suddenly experiencing extreme anger towards people around you for no reason is not good at all). Paranoia I always associated with hyper though. Are there any other symptoms? What does your consultant or GP say about them? They have finally agreed to lower my dose and don't want to see me for 3 months now. I'm really hoping that this lower dose sorts my brain out as I've been feeling "detached" kind of for 3 months. It makes life fairly challenging. lol. I've never experienced anything like this before and it's so hard to describe, almost as if you are tipsy/drunk all the time. I've started my lowe r dose of 150mcg this saturday. Link to comment Share on other sites More sharing options...
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