Blondie73 Posted February 7, 2011 Author Share Posted February 7, 2011 Here is my daughter.This was done a few months ago,she is 18 now. Link to comment Share on other sites More sharing options...
Blondie73 Posted February 7, 2011 Author Share Posted February 7, 2011 Anyone else know people with this illness? Link to comment Share on other sites More sharing options...
Anna B Posted February 8, 2011 Share Posted February 8, 2011 Oh Blondie, what a beautiful film, and what a beautiful child. The Love and happiness that shines out of this film from all the people involved is just amazing. Thankyou so much for sharing it with us, and very best wishes to you and your incredible daughter. Link to comment Share on other sites More sharing options...
Blondie73 Posted February 8, 2011 Author Share Posted February 8, 2011 Thankyou Anna:) Link to comment Share on other sites More sharing options...
Blondie73 Posted February 9, 2011 Author Share Posted February 9, 2011 The Make a Wish Foundation have arranged for her to meet Westlife next month after their concert! Link to comment Share on other sites More sharing options...
decaff Posted February 9, 2011 Share Posted February 9, 2011 Anyone else know people with this illness? That film is simply fantastic. My mum works for the HDA and i have seen and heard some heart breaking stories. There is no known cure for the disease yet and the only thing available is support and care for the patients. However, there are some of the world's top doctor's working on finding that cure and i sincerely hope that one day they do find it. Link to comment Share on other sites More sharing options...
Blondie73 Posted February 9, 2011 Author Share Posted February 9, 2011 So do I!It will come to late for my daughter though.It has kept her a child mentally,she never grew up. Link to comment Share on other sites More sharing options...
Blondie73 Posted February 11, 2011 Author Share Posted February 11, 2011 BUMP,For those who missed this story the first time round! Link to comment Share on other sites More sharing options...
Blondie73 Posted February 14, 2011 Author Share Posted February 14, 2011 Does anyone else on here have or know anyone with a rare illness? Link to comment Share on other sites More sharing options...
Blondie73 Posted February 14, 2011 Author Share Posted February 14, 2011 Jonathan is doing a radio interview about his adventure later for those who maybe interested.If you miss it live do not fear as it can be played again later on!! http://www.blogtalkradio.com/help4hd/2011/02/14/help-4-hd-with-jonathan-dickinson Link to comment Share on other sites More sharing options...
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