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Amniotic Band - does anyone have any info?


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My son (5 months old) was born with a really small toe. Middle toe, right foot. It's really skinny and short with no nail and does not appear to be growing much.

 

The doctor referred us to a specialist, describing it as an 'Amniotic Band' but did not say much more.

 

I then got a letter saying it was far too expensive to refer us, and its best just to leave it. I guess toes just aren't that important....

 

But what I want to know is: Will this little toe ever grow? It might seem minor but can you, as adults imagine looking at your foot and seeing just a tiny toe in the middle of an adult foot?

 

Has anyone else experienced this? It's all new to me.

 

Any advice appreciated.

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I'm sorry, I don't have the knowledge to be of more help. I do believe it's quite common for children to have problems with toes, sometimes through nature, and sometimes through accidents. I guess a GP might say, if it doesn't affect your child's balance/ability to walk when the time comes (which I would guess it wouldn't), then it probably won't be viewed in medical terms as a major or urgent problem. If, cosmetically, it becomes a problem later, then I suppose the situation might be reassessed. This is all guesswork on my part. I would probably be getting back in touch with my GP, if this was me, and making an appointment to discuss the letter and any possible further implications. Maybe searching on the internet, you will find mothers and children in similar situations which might be of help to you.

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I'm sorry, I don't have the knowledge to be of more help. I do believe it's quite common for children to have problems with toes, sometimes through nature, and sometimes through accidents. I guess a GP might say, if it doesn't affect your child's balance/ability to walk when the time comes (which I would guess it wouldn't), then it probably won't be viewed in medical terms as a major or urgent problem. If, cosmetically, it becomes a problem later, then I suppose the situation might be reassessed. This is all guesswork on my part. I would probably be getting back in touch with my GP, if this was me, and making an appointment to discuss the letter and any possible further implications. Maybe searching on the internet, you will find mothers and children in similar situations which might be of help to you.

 

I took that same stance myself. it won't affect his balance, so what the hell. But now he's growing, it's really obvious. It's really tiny. If I can spare future bullying for him then I will, no matter what.

 

I just don't know how to handle it....

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I took that same stance myself. it won't affect his balance, so what the hell. But now he's growing, it's really obvious. It's really tiny. If I can spare future bullying for him then I will, no matter what.

 

I just don't know how to handle it....

 

Just a reminder, that wasn't my view, I was talking from a possible GP perspective. I did say, I think you should talk it over with your GP some more, ask him/her the questions that are on your mind, and tell him/her about your concerns.

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Just a reminder, that wasn't my view, I was talking from a possible GP perspective. I did say, I think you should talk it over with your GP some more, ask him/her the questions that are on your mind, and tell him/her about your concerns.

 

Thankyou for the advice. I was just wondering if anyone had any personal experience. I'd never heard of it before.

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Just a reminder, that wasn't my view, I was talking from a possible GP perspective. I did say, I think you should talk it over with your GP some more, ask him/her the questions that are on your mind, and tell him/her about your concerns.

 

Thankyou for the advice. I was just wondering if anyone had any personal experience. I'd never heard of it before.

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The theory is that during pregnancy a fibrous band of the amnion, which is the inner membrane that contains your baby, placenta and the amniotic fluid, somehow tightens as the pregnancy progresses around a finger, toe or even limb , causing it to be malformed or even missing.

As Darth suggested i would go back for a chat with your GP as to ask all the questions that you have, and I would write down your questions before you go so that you get a chance to ask everything you need to know.

The only other information that I can share with you is that my daughter has "special" toe that is misformed and that its never been a problem in either walking, buying shoes or even at school.

I hope you get the reassurance that you need.

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The theory is that during pregnancy a fibrous band of the amnion, which is the inner membrane that contains your baby, placenta and the amniotic fluid, somehow tightens as the pregnancy progresses around a finger, toe or even limb , causing it to be malformed or even missing.

As Darth suggested i would go back for a chat with your GP as to ask all the questions that you have, and I would write down your questions before you go so that you get a chance to ask everything you need to know.

The only other information that I can share with you is that my daughter has "special" toe that is misformed and that its never been a problem in either walking, buying shoes or even at school.

I hope you get the reassurance that you need.

 

Wow, sounds like you and I are in the same boat.

 

I hope you do not mind me asking but was you daughter's special toe caused by this amniotic band? And if so, did it grow much if at all?

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Wow, sounds like you and I are in the same boat.

 

I hope you do not mind me asking but was you daughter's special toe caused by this amniotic band? And if so, did it grow much if at all?

 

no, it was just a very wonky shape overlapping the next one, when she was little she loved it being called Special and its only now she's in her early twenties that she grumbles about it.

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