*_ash_* Posted February 3, 2014 Share Posted February 3, 2014 Why is it chilling? Somebody explain clearly how it's bad. It's nothing to do with insurance companies, they can only get your data with your consent, as they can now. I find information exchange chilling (or at least I did). Now I just realise it's everywhere, and I can't do anything about it. If you need to have it explained to you, then you're probably quite safe, and don't need to worry. You might even get some coupons sent to you. Link to comment Share on other sites More sharing options...
ronthenekred Posted February 3, 2014 Share Posted February 3, 2014 There are many instances within these threads where the argument is "Why do you feel it necessary to know what peoples sexual preferences are?" Like ash..I find it creepy at the least and downright invasive at the most. I guess there is always the old and tiring argument..What have you got to hide? Link to comment Share on other sites More sharing options...
Cyclone Posted February 3, 2014 Share Posted February 3, 2014 Utterly chilling. This government is a disgrace. Looking at the fees only commercial companies would bother requesting 'red' data for individuals. Thanks for the links xt500 Having your medical data centralised to make it accessible to the NHS wherever you rock up (at hospital for example) is 'utterly chilling' to you? I have opted out, but primarily down to data security concerns and having worked on the spine project. ---------- Post added 03-02-2014 at 07:33 ---------- I find information exchange chilling (or at least I did). Now I just realise it's everywhere, and I can't do anything about it. If you need to have it explained to you, then you're probably quite safe, and don't need to worry. You might even get some coupons sent to you. The government actually strictly limits information exchange between departments. It's not a free for all for department X and Y to pool their knowledge on you. ---------- Post added 03-02-2014 at 07:34 ---------- There are many instances within these threads where the argument is "Why do you feel it necessary to know what peoples sexual preferences are?" Like ash..I find it creepy at the least and downright invasive at the most. I guess there is always the old and tiring argument..What have you got to hide? If I arrive unconscious in an ambulance in Nottinghamshire, I have nothing to hide from the Drs in my medical records. In fact, I'd be quite happy for them to have access. That can't happen if the records are on paper somewhere in Sheffield! Or even stored on a single NHS trust computer system in Sheffield. Link to comment Share on other sites More sharing options...
Moosey Posted February 3, 2014 Share Posted February 3, 2014 I've said it before and no one answered. Can someone who objects give me a specific example of "something bad" that could happen as a result of this? Posted from Sheffieldforum.co.uk App for Android Link to comment Share on other sites More sharing options...
RichJay Posted February 3, 2014 Share Posted February 3, 2014 Sorry , I know this is already being covered in another thread but felt it needed raising again - do you realise that unless you opt out of the care.data scheme by the end of March , ALL of your electronic GP records will automatically be extracted and loaded onto a huge database called the Health and Social Care Information Centre , a repository based in Leeds . Your GP has no control over this extraction of data and , thanks to the Health and Social Care Act 2012 ( aka privatisation of the NHS ) is powerless to prevent it . This data will not be used to improve your care as a patient , and you will not be anonymous as your date of birth , NHS number , gender and full postcode will be on your details . See medConfidential website for opt-out leaflets . I certainly , despite having nothing in my medical records to hide , do not want my data shared . When the NHS has been privatised and we all have to consider taking out private healthcare , how comfortable will it feel knowing that private health insurance companies know everything about us , and could deny cover for just about anything ? Similar data from visits to A&E and admissions to hospital are already being used in many research projects with the aim of improving patient care. The vast majority of users of the data won't get to see your NHS number, date of birth or full postcode because these are only being used by the Health and Social Care Information Centre to link records before they are pseudonymised. Those who need access to full records (for example in a clinical trial) will need patient consent before it is given to them. Link to comment Share on other sites More sharing options...
I1L2T3 Posted February 3, 2014 Share Posted February 3, 2014 Having your medical data centralised to make it accessible to the NHS wherever you rock up (at hospital for example) is 'utterly chilling' to you? I have opted out, but primarily down to data security concerns and having worked on the spine project. ---------- Post added 03-02-2014 at 07:33 ---------- The government actually strictly limits information exchange between departments. It's not a free for all for department X and Y to pool their knowledge on you. ---------- Post added 03-02-2014 at 07:34 ---------- If I arrive unconscious in an ambulance in Nottinghamshire, I have nothing to hide from the Drs in my medical records. In fact, I'd be quite happy for them to have access. That can't happen if the records are on paper somewhere in Sheffield! Or even stored on a single NHS trust computer system in Sheffield. This is not a centralised patient record for access by medical professionals. Go away and read up on that point. Come back and we'll discuss. Thanks. Link to comment Share on other sites More sharing options...
Xt500 Posted February 3, 2014 Share Posted February 3, 2014 I've said it before and no one answered. Can someone who objects give me a specific example of "something bad" that could happen as a result of this? Posted from Sheffieldforum.co.uk App for Android Who knows? And thats what worries people!! Link to comment Share on other sites More sharing options...
Cyclone Posted February 3, 2014 Share Posted February 3, 2014 This is not a centralised patient record for access by medical professionals. Go away and read up on that point. Come back and we'll discuss. Thanks. Happy to read more about it, this thread seems to have been merged with another since I commented this morning. Unless I missed them, this morning there were no links to any further information and the whole thing was a bit vague. Interesting. I can see the underlying point of aggregated data being made available, but I think I'll be opting out of this, I can't see any good reason why identifiable patient records should be made available outside a clinical setting. ---------- Post added 03-02-2014 at 10:47 ---------- I've said it before and no one answered. Can someone who objects give me a specific example of "something bad" that could happen as a result of this? Posted from Sheffieldforum.co.uk App for Android Boopa could get hold of the records and refuse you personal medical care or insurance. Other organisations could get hold of it and apply targeted selling techniques to you. If the data leaks further than that, then someone unscrupulous could attempt to blackmail you regarding your medical history. Link to comment Share on other sites More sharing options...
Moosey Posted February 3, 2014 Share Posted February 3, 2014 Boopa could get hold of the records and refuse you personal medical care or insurance. Other organisations could get hold of it and apply targeted selling techniques to you. If the data leaks further than that, then someone unscrupulous could attempt to blackmail you regarding your medical history. Take out BUPA and see what happens if you fail to disclose a previous condition and then claim. Just the same as if you fail to tell your insurers something. This is info they're entitled to and if you withhold it you won't recover your money. Nothing new there. Who is going to blackmail someone about their medical history and why? Such people would get that information whether the records were kept in this way or not. Blackmail fans would find a way if they were determined. Posted from Sheffieldforum.co.uk App for Android Link to comment Share on other sites More sharing options...
onewheeldave Posted February 3, 2014 Share Posted February 3, 2014 Why is it chilling? Somebody explain clearly how it's bad. It's nothing to do with insurance companies, they can only get your data with your consent, as they can now. It's about drug research & finding ways the nhs could improve it's service. The details for who can use the data are here: http://www.hscic.gov.uk/dlesaac http://www.hscic.gov.uk/dles It's chilling because the people running this have not included an opt-out form with the info leaflet- very underhand, and, a clear indication that there's something dodgy about this. And, private companies can access the data. Also, a point not yet been raised- given the typical ineptitude of companies in charge of data and the frequent mistakes, can we be sure that even if we opt-out, and the 2 necessary codes are placed on our records, that they won't be uploaded anyway? If this was about imroving the NHS, all that's necessary is a leaflet to all patients explaining the benefits, with a form so the ones who believe it, can opt-in. That really is the key to engendering trust- opt-in forms. An opt-out form is an inferior option, but would be far better than the current 'no form whatsever for opt-in/opt-out. ---------- Post added 03-02-2014 at 12:08 ---------- Having your medical data centralised to make it accessible to the NHS wherever you rock up (at hospital for example) is 'utterly chilling' to you? I have opted out, but primarily down to data security concerns and having worked on the spine project. ---------- Post added 03-02-2014 at 07:33 ---------- The government actually strictly limits information exchange between departments. It's not a free for all for department X and Y to pool their knowledge on you. ---------- Post added 03-02-2014 at 07:34 ---------- If I arrive unconscious in an ambulance in Nottinghamshire, I have nothing to hide from the Drs in my medical records. In fact, I'd be quite happy for them to have access. That can't happen if the records are on paper somewhere in Sheffield! Or even stored on a single NHS trust computer system in Sheffield. Bizarre that you're defending this, yet have opted out yourself due to data security concerns ---------- Post added 03-02-2014 at 12:10 ---------- I've said it before and no one answered. Can someone who objects give me a specific example of "something bad" that could happen as a result of this? Posted from Sheffieldforum.co.uk App for Android My private medical data will be accessible by individuals and companies who currently cannot read it. ---------- Post added 03-02-2014 at 12:22 ---------- Here's an article on how 41% of GPs are opting out- http://www.pulsetoday.co.uk/your-practice/practice-topics/it/over-40-of-gps-intend-to-opt-themselves-out-of-caredata-scheme/20005648.article Here's a quote from a GP on that page- Dr Marie-Louise Tidmarsh, a GP in Horsley Woodhouse, Derbyshire, said that she would be opting out as her details could easily identify her to her neighbours. She said: ‘I think patients have been misled about the “confidential” nature of the data extractions, and it is not clear to whom the data may be sold.’ as none of the info leaflets being sent out will contain an opt-out form, here's a link to a page where one can be downloaded and printed off- http://medconfidential.org/how-to-opt-out/#download The more people opt out of this, the more we send a message to the authorities that- 1. we do not trust them to respect our private data 2. we deeply resent the fact that their info leaflets do not come with an opt-out form 3. we will happily defend our absolute right to determine who sees our private medical data and will do our best to scupper this, and any other similar schemes in future, unless they pay us the basic respect of being able to opt-out easily by filling in an attached opt-out form. They're taking the p*ss with this- let's all send a message by opting-out. Link to comment Share on other sites More sharing options...
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