bunnykins Posted August 3, 2007 Share Posted August 3, 2007 You could send an email to this guy, tomkeys@blueyonder.co.uk Link to comment Share on other sites More sharing options...
ey up Posted August 3, 2007 Author Share Posted August 3, 2007 occasional rash - has for a few weeks at a time, very itchy then disappears. Link to comment Share on other sites More sharing options...
ey up Posted August 3, 2007 Author Share Posted August 3, 2007 Apparently the diarrhea can come on immediately after eating various foods - especially when eating out, intense pain and having to rush to loo, sometimes two or three times within 30 minutes. This can also happen during the night, especially if eating before going to bed. Bent double in bed with VERY severe pain in lower part of abdomen. Link to comment Share on other sites More sharing options...
Yellowrose Posted August 3, 2007 Share Posted August 3, 2007 Does anybody have any info on Ceoliac disease, its symptoms what its like to live with etc. A friend of mine is having trouble and one of the things they suspect is this - and are waiting on an appointment with their GP. There is plenty of info on the net and there is a Coeliac Society (also on the net) where you can get info. Basically it is a problem with gluten which is found in wheat and some other stuff, the body cant digest it. I had a test for it a couple of years ago and fortunately it came out negative. The test (endoscopy/gastroscopy) was fairly awful (camera down gullet into stomach) but didnt last long. You can have a throat spray and/or a mild anaesthetic/sedative. I had both and I was still fighting it (imagine having a tube down your throat). I came away with red patches all over my face and chest and the white of my eye was red through retching/straining. Its not that it hurts particularly, its just that its your natural instinct to fight it. Anyway there is no cure, but the treatment is a gluten free diet which many people follow and the coeliac society can give you information on what to avoid. For example, some chocolates contain gluten, some dont. You can get gluten free bread and biscuits. My cousin has had it all her life and has managed fine. Link to comment Share on other sites More sharing options...
Plain Talker Posted August 3, 2007 Share Posted August 3, 2007 yellowrose, that is why I am in absolute dread, as the gastro doc wants to do a 'scopy on my stomach. I freak about gagging on food (I have to chop things like noodles and spaghetti very small to eat them)so goodnes knows how I'd go on with the 'scopy.. thankfully, I have heard that it can be diagnosed by a blood test these days, which is much less invasive. I think I might see if I can opt for that, TBH. Link to comment Share on other sites More sharing options...
its smee Posted August 5, 2007 Share Posted August 5, 2007 This sounds very much like what i'm going through pain, bloating, any info appreciated. Link to comment Share on other sites More sharing options...
ey up Posted August 7, 2007 Author Share Posted August 7, 2007 My friend has been to doctors and he feels he just got fobbed off. Told to change his diet, more fruit + veg etc. He says he wasn't taken seriously at all and is really worried that there is something seriously wrong. Do you think its safe to leave it and hope it goes away or should he ask for another opinion? Link to comment Share on other sites More sharing options...
samstar999 Posted August 9, 2007 Share Posted August 9, 2007 Hi all I went out with my (coeliac) friend last night and she said to google 'Gluten free message board' where there is lots of helpful info. She says it is run by Coeliacs for coeliacs and thinks that at least one person on there has a medical background. She goes on it all the time and says it really helps. Good luck. Link to comment Share on other sites More sharing options...
spicey Posted August 9, 2007 Share Posted August 9, 2007 My friend has been to doctors and he feels he just got fobbed off. Told to change his diet, more fruit + veg etc. He says he wasn't taken seriously at all and is really worried that there is something seriously wrong. Do you think its safe to leave it and hope it goes away or should he ask for another opinion? If he feels like hes been fobbed off, he should ask to be refered to a specialist. In the meantime tell him to avoid eating food that contains wheat and keep a food diary so he knows what he has eaten when he gets the symptoms. Few years back I was getting really bad stomach pains etc and I just stopped eating wheat and slowly put myself onto wholemeal products which solved my problem (which isn't coeliac). Link to comment Share on other sites More sharing options...
forkbender Posted July 13, 2008 Share Posted July 13, 2008 My wife was diganosed 15 years ago after years of suffering and being told to take valium or libreum to clam her down. She self diagnosed the allergy to wheat and things were vastly improved. However the intolerance to gluten (in Ryveta for e.g.) gradually built up and finally when we moved to Sheffield the diagnosis was made. My understanding that only two tests currently exist to prove the existence of the condition a) a blood test and b) a biopsy of the gut (to see if its lining has been "smoothed away"). Consequently it appears to be unnecessary to have both tests if the blood test came back postive. As a result of my wife's condition (apart from any sandwhich or toast) we have no problems sourcing gluten (and wheat) free foodstuffs and sauces etc. One word of advice; some stuff marked gluten free might well have wheat (with the gluten extracted) put back in it -so you need to be sure if your intolerance is just to gluten..or wheat as well. I can honestly say it hasn't hampered our diet at all, with one of us being coeliac. Yes for my wife, the bread is expensive and only just edible when toasted; but there are biscuits and other snack foods that are fine. Sure any booze made by any of the gluten crops (wheat/barley/rye/hops)..sometimes oats are OK...maize is OK as is cornflour and rice flour) is out of the question (no lager/beer) but cider, wines, and spirits are fine. Eating out can be a problem, largely because of lack of awareness by chefs -my wife has often been served a dessert of ice cream (after specifically checking that it's OK for coeliacs) with a "wafer"..!! I am pleased to say that THE BRADWAY in Sheffield is at pains to cater for coeliacs. And furthermore Monday nights will be gluten free night, so that all the frying oil etc. will be gluten free and fresh. So those who long for a battered cod and chips and mushy peas (any plenty of other things too) will be pleased to find that they can have the food that's going to be cooked in the frying oil; because it won't be cross contaminated and the batter will be a tempura (gluten free). Please don't think that being diagnosed is some kind of sentence -it's a inconvenient at times, but by and large the family need not be affected at all. And get booked in to the BRADWAY pub. Link to comment Share on other sites More sharing options...
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