leancranker Posted July 15, 2008 Share Posted July 15, 2008 I have had a bit of history with stomache disorders, but it seems that I am coeliac. To Plain Talker, I had a scopy and it was really unpleasant (sorry), if you can get an alternative means of diagnosis tehn go for that first. When I went for mine, the nurse asked if I wanted a sedative, I asked why and she said it was quite uncomfortable, but I would have to stay at the hospital for a couple of hours until I was recovered. I said, no thanks I'll just grin and bear it. When she looked at me a bit funny, I should have taken the drugs option. I didn't realise that swallowing several feet of slippery hosepipe was the most traumatic thing that has ever happened to me. I had two nurses holding me down, and when I tried to grab the camera they had to shout at me. Ah well, I got to go home earlier, that showed them... Take the drugs my friend, that's my advice, take the drugs! Link to comment Share on other sites More sharing options...
Suffragette1 Posted July 15, 2008 Share Posted July 15, 2008 forkbender - my friend (who is the same person samstar999 refers to in her post) also finds eating out a real problem. She phones ahead to ask whether there is a gluten-free alternative on the menu. Frequently, after lengthy explanations, something can be sorted, however, on more than one occasion she's been served a ploughman's for example, with a huge wedge of bread! There seems to be little awareness of Coeliac disease in the catering industry. What is even more staggering, is that she will have to go into hospital at some point for an op and take her own food!! Apparently the hospital cannot cater for her needs. Unbelievable, you'd think of all places, this would be one where she could have a gluten free meal. The Walnut Club has gluten free alternatives on its menu. Link to comment Share on other sites More sharing options...
Plain Talker Posted July 16, 2008 Share Posted July 16, 2008 I have had a bit of history with stomache disorders, but it seems that I am coeliac. To Plain Talker, I had a scopy and it was really unpleasant (sorry), if you can get an alternative means of diagnosis tehn go for that first. When I went for mine, the nurse asked if I wanted a sedative, I asked why and she said it was quite uncomfortable, but I would have to stay at the hospital for a couple of hours until I was recovered. I said, no thanks I'll just grin and bear it. When she looked at me a bit funny, I should have taken the drugs option. I didn't realise that swallowing several feet of slippery hosepipe was the most traumatic thing that has ever happened to me. I had two nurses holding me down, and when I tried to grab the camera they had to shout at me. Ah well, I got to go home earlier, that showed them... Take the drugs my friend, that's my advice, take the drugs! I've asked the Gastro chap about not having to have the scope, cos I really really don't want it. Last time they tried to sedate me, to do it, I was in a real state. My BP was so high they thought I was going to have a stroke (I was 230/ 160-odd) and each time the doc tried to get the cannula in to knock me out, my vein "popped". After the third try, he came toward me with the fresh cannula, and I said "No way! you've had three goes, unsuccessfully, I'm not doing it again!" I have had the positive blood test, so I don't actually see why they need to put me through the scopy - but they have said they need a sample of the lining of my gut, to confirm, before they can prescribe the gluten free foods. I read that there is a test, a simple blood test, that can be done, now. I'd far and away prefer that! Link to comment Share on other sites More sharing options...
Ginger_Kitty Posted July 16, 2008 Share Posted July 16, 2008 I've asked the Gastro chap about not having to have the scope, cos I really really don't want it. I have had the positive blood test, so I don't actually see why they need to put me through the scopy - but they have said they need a sample of the lining of my gut, to confirm, before they can prescribe the gluten free foods. I read that there is a test, a simple blood test, that can be done, now. I'd far and away prefer that! I've asked the same too PT, esp as by the time I finally got referred I was pregnant! But no, to give me prescription foods I have to have the gastroscopy I'm now back on gluten and preparing myself mentally for it Link to comment Share on other sites More sharing options...
Plain Talker Posted July 16, 2008 Share Posted July 16, 2008 oh, dear GK... not nice! Link to comment Share on other sites More sharing options...
Ginger_Kitty Posted July 16, 2008 Share Posted July 16, 2008 I'm just making sure I enjoy all that food thats been banned for the last several years Link to comment Share on other sites More sharing options...
forkbender Posted July 16, 2008 Share Posted July 16, 2008 I've asked the same too PT, esp as by the time I finally got referred I was pregnant! But no, to give me prescription foods I have to have the gastroscopy I'm now back on gluten and preparing myself mentally for it You don't have to have the scope for precriptions for food! That's not a national policy I am sure -if the blood test is postive then that's it! Doctors however are reluctaant to precribe because the gluten free stuff is expensive. My wife's Dr used to precribe bread for her (nothing else) whereas her friend in Chesterfield had a DR who precribed not just bread but other food as well -pizza, cakes, rolls etc. My wife's Dr (Sheffield)eventually stopped prescribing on grounds of cost. Apart from bread though, gluten/wheat free eating is easy..and only eat out in establishments like the Bradway who know all about the condition and how for some it can be very serious (blisters etc) whilst for others it's (just!) a painful, immediate upset stomach. To Suffragettal re the ploughman's -my wife once went out for meal and the chef was very knowledgeable about coaliac (appeared so) and my wife tucked in to her meal -on the way out the chef appeared to check that she'd enjoyed her steak in a sauce with a salad because "not being to eat potatoes must be a pain" -No she had the pain all night long in the toilet!! Link to comment Share on other sites More sharing options...
Ginger_Kitty Posted July 16, 2008 Share Posted July 16, 2008 Sadly I've had a blank 'no' from GP (after researching it) and consultant at Calow in terms of prescription foods And yes I know its pretty easy to live gluten free, I've managed it for over two years, even eating out!! But I'd like to cut down the costs and have other things available to me that I can't buy in Morrisons, as well as more support... should I indeed be Coeliac and not just intolerant to gluten Anyway, I'd rather have the test and it be confirmed one way or the other... Also I know if I go through with it then my Dad will too (its taken years of battling with him) and if it makes life easier for not just me then so be it... for a few moments of discomfort after 3 months of eating 'banned' foods, for the rest of my life to be made easier, then I guess its worth it Link to comment Share on other sites More sharing options...
forkbender Posted July 16, 2008 Share Posted July 16, 2008 Sadly I've had a blank 'no' from GP (after researching it) and consultant at Calow in terms of prescription foods And yes I know its pretty easy to live gluten free, I've managed it for over two years, even eating out!! But I'd like to cut down the costs and have other things available to me that I can't buy in Morrisons, as well as more support... should I indeed be Coeliac and not just intolerant to gluten Anyway, I'd rather have the test and it be confirmed one way or the other... Also I know if I go through with it then my Dad will too (its taken years of battling with him) and if it makes life easier for not just me then so be it... for a few moments of discomfort after 3 months of eating 'banned' foods, for the rest of my life to be made easier, then I guess its worth it Oh dear -the daft thing is they don't have enough tests to "prove" the coeliac condition -they only have the blood test and the "gut" biopsy. My wife failed on both of those tests...but her specialist (Mr Lobo at the Hallamshire) said she was definitely coeliac even though the only two tests they have to prove it, she failed on. I think it's time the medical profession joined up their approach on all this. Good luck to you. Link to comment Share on other sites More sharing options...
Ginger_Kitty Posted July 16, 2008 Share Posted July 16, 2008 I agree!! I think its about the the medical profession started talking to each other on many issues! Link to comment Share on other sites More sharing options...
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